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Other Fibro-Sufferers

He said "A lot of women your age have this problem. We don't know why." Ouch!!! I was only 26 at the time. No-one I knew had this problem. He charged me $150.00 for that statement. I wanted to cry. That was not what I wanted to hear. I wanted to hear there was something wrong with me & they could fix it. ~Dott 'Living With Fibromyalgia

I struggle on a daily basis, and I go through things that I tell no one, mostly because I know they wont understand. I had to end work for a little bit because I just cant handle it....in fact right now it is just hard to handle life. But to finally have a name to what I have and know why I am feeling this way and that I am not crazy....well that is the only good part about it all. ~Cissy

A LIST OF GENTLE AFFIRMATIONS:
I am strong and can take control in my life concerning this disease.
I am capable of solving the problems facing me.
I am able to meet the challenge of this illness.
I am capable of taking charge of my Fibromyalgia.
I love and believe in myself at all times.
I love and accept myself just as I am.
I am learning to relax and let go.
I am making time for rest and relaxation.
I am willing to ask others for the support I need.
It's okay if I make mistakes. I don't have to be perfect.
My inherent value is not dependent upon what I can do
~by NancieRose~

It's not so very hard to imagine how others seem so skeptical about my illness, because even I find myself in denial now and then. From journal of 'The Pain Behind The Smile'

However, no matter the degree to which one suffers the physical pain, anyone who mentions that they suffer from this illness, will undoubtedly be subjected to an unbearable degree of skepticism. This is the "other" pain of Fibromyalgia. Such skepticism brings to those already suffering from the real physical pain of Fibromyalgia, the additional burden of shame, guilt, and pressure to mask what lives inside them. The 'Other' Pain of Fibromyalgia.

Fibromyalgia causes you to have a lot of pain, it can affect places such as your back, neck, arms, legs, and when I say pain I mean great pain, it has brought tears to my eyes on more than one occasion, it causes you to have very strange sleeping habits, which in turn makes you very tired indeed, imagine a 4lb lead weight pressing down on your neck and no matter what you do it doesn't ease up, well that's just one little symptom. A Bit of Roly's World

From what I see in the newsgroup it is another symptom of Fibromyalgia. cents no doctors care about learning about Fibro none of them knows anything about it, let alone any of it's symptoms. Debbie's Fibro Story

Most of us with FMS/CFIDS experience memory disturbances to a certain degree. Sleep disruption, agonizing pain, blood flow disturbances, and perhaps a brain chemistry abnormality interfere with short-term memory. Consider these suggestions for coping with this exasperating problem. Dealing With Brainfog: Memory

I went through all this for 15 years... waiting for someone, anyone, to figure out why I was a young woman running around in an old ladies body! No one would listen to me, they thought I was just a baby complaining about every little thing. FINALLY, I convinced my doctor to send me to a specialist. It took 6 months to get an appointment with him, but he ran me thru a series of tests, and finally confirmed my illness was NOT in my head. My life as a fibromaniac

One day I saw Don Goldenberg, M.D. (a well-known rheumatologist/FMS specialist who practices in the Boston area) on the "Good Morning America" show. He had a chart with the tender points on it and was describing the symptoms of Fibromyalgia. I said out loud "Geez, that's me. That's what I have!" So, I basically diagnosed myself first and then had it confirmed by a rheumatologist. I also have Myofascial Pain Syndrome (MPS) and Multiple Chemical Sensitivities (MCS). Me and Mine

 

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